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October is Dysautonomia Awareness month...

I haven't done a health post in so long but it was the reason I started this blog in the beginning and advocacy is something that is so important to me so I am back for Dysautonomia awareness month!



I was diagnosed with a form of dysautonomia called PoTS (Postural orthostatic Tachycardia syndrome) last November even though I expirenced symptoms for probably a year and a half before that.

Dysautonomia is an umbrella term that concerns itself with the malfunction in the autonomic nervous system.

The autonomic nervous system controls many vital functions in the body such as breathing, heart rate, blood pressure and digestion to name a few!

My form of dysautonomia (PoTS) is thought to affect 1/100 teenagers with it being more common in girls than boys. Some people have been lead to believe that PoTS is rare... NO in fact its just rarely diagnosed with most patients having to wait four years for a diagnosis! PoTS is actually one of the most common illnesses that you haven't heard of!

PoTS causes us to pass out. When a normal person stands up their blood vessels in their legs constrict to push blood back up to their hearts and brains. In someone with PoTS their blood vessels don't constrict so blood pools causing the heart to beat faster (tachycardia) causing them to pass out. Standing up isn't the only thing that can cause us to pass out though! Anything our body sees as a threat can cause us to pass out and symptoms can be exaggerated in stressful situations, after eating and heat.

Other symptoms can include: low blood pressure, sickness, nausea, headaches, extreme fatigue and dizziness to just name a few.

There is no cure for PoTS only management but lifestyle changes and/or medication can drastically improve symptoms. PoTS patients are asked to increase their salt and water intake also drinking things like electrolytes can help as well. In addition to this building in physical exercise and eating certain diets can improve symptoms.

I hope this post has helped you understand more about Pots! Please see this older post about PoTS for more information:
http://www.niamhslife.com/2017/11/ive-got-pots_25.html

Please feel free to share this post so we can raise more awareness this October!

Love Niamh xx

Comments

  1. Thank you for this post - I didn't know this was a thing! I'll be more aware of it now!

    ReplyDelete

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