Skip to main content

October is Dysautonomia Awareness month...

I haven't done a health post in so long but it was the reason I started this blog in the beginning and advocacy is something that is so important to me so I am back for Dysautonomia awareness month!



I was diagnosed with a form of dysautonomia called PoTS (Postural orthostatic Tachycardia syndrome) last November even though I expirenced symptoms for probably a year and a half before that.

Dysautonomia is an umbrella term that concerns itself with the malfunction in the autonomic nervous system.

The autonomic nervous system controls many vital functions in the body such as breathing, heart rate, blood pressure and digestion to name a few!

My form of dysautonomia (PoTS) is thought to affect 1/100 teenagers with it being more common in girls than boys. Some people have been lead to believe that PoTS is rare... NO in fact its just rarely diagnosed with most patients having to wait four years for a diagnosis! PoTS is actually one of the most common illnesses that you haven't heard of!

PoTS causes us to pass out. When a normal person stands up their blood vessels in their legs constrict to push blood back up to their hearts and brains. In someone with PoTS their blood vessels don't constrict so blood pools causing the heart to beat faster (tachycardia) causing them to pass out. Standing up isn't the only thing that can cause us to pass out though! Anything our body sees as a threat can cause us to pass out and symptoms can be exaggerated in stressful situations, after eating and heat.

Other symptoms can include: low blood pressure, sickness, nausea, headaches, extreme fatigue and dizziness to just name a few.

There is no cure for PoTS only management but lifestyle changes and/or medication can drastically improve symptoms. PoTS patients are asked to increase their salt and water intake also drinking things like electrolytes can help as well. In addition to this building in physical exercise and eating certain diets can improve symptoms.

I hope this post has helped you understand more about Pots! Please see this older post about PoTS for more information:
http://www.niamhslife.com/2017/11/ive-got-pots_25.html

Please feel free to share this post so we can raise more awareness this October!

Love Niamh xx

Comments

  1. Thank you for this post - I didn't know this was a thing! I'll be more aware of it now!

    ReplyDelete

Post a Comment

Popular posts from this blog

Interrailing around Europe...

How do you begin to explain one of the best experiences of your life? Seeing the world (well 5 countries) and making the best memories. This is my journey interrailing around Europe with my friend Amy.

Lets start at the beginning in Paris, which we were lucky to see, considering we narrowly made our train. On your interrail ticket it says to arrive at the station half an hour before your journey, be there an hour before! We arrive in Paris and after wandering up several wrong streets we find our hostel, Which is basic at best and the facilities were indescribable and its probably best I don't describe the shower anyways... Nevertheless we set out for the afternoon in true tourist spirit and saw as much of Paris as we could and getting the most candid photos possible. The Eiffel Tour, the Musee du louvre and the arc de Triomphe all featuring. The second day in Paris was spent in Disney land where Amy achieved her ambition in owning gold sparkly ears. To say this day was magical wou…

The eductaion system: a converation...

After recently finishing sixth form I wanted to reflect on my journey through secondary school; express mine and others views on the education system in the UK, the positives and the negatives. This post includes my views and also the views of others. Also enjoy our leavers and prom photos.

Applying for university...

I applied to university in October 2017 and will be starting in September 2018..hopefully! I was accepted on to 5/5 of the courses I applied to with 4 conditional offers and one unconditional offer, these offers included 2 russel group universities. I did university tests and completed an individual interview as well as a group interview. This was a highly requested post and as the next year are starting to look around universities and complete UCAS applications it was a perfect time to write this post.
Personal Statement Your personal statement really needs to stand out, you need to show that you are excited and engaged in the course but NEVER use the word passion!!! (Everyone uses it and its better to prove you have a passion rather than just stating it.) Its good to do an introduction - why are you excited about applying for the course, show an interest in a particular part and show your knowledge. The second paragraph you could talk about your current courses - what you have enjo…